Advertisement

Compassionate Allowances—the “Fast Track” for Those with Certain Disabilities

By / Social Security Disability Benefits / 4 Comments

Learn how certain disabilities qualify under the SSA’s Compassionate Allowances program to fast track approval of your Social Security Disability claim.

Some disabilities qualify for a “compassionate allowance,” which will help you cut the red tape and jump to the head of the line, in regard to the medical evidence requirements. (However, non-medical requirements must still be met, too.)

Ordinarily, if you or those you’re helping apply for benefits suffer from a severe disability, it may be very difficult or impossible to wait months for a decision and then another one or two months to receive the first benefit payment.

Advertisement

That’s why, in 2008, the Social Security Administration (SSA) launched the Compassionate Allowances program. Initially it listed 50 diseases and other medical conditions—primarily neurological disorders, cancers and rare diseases—that qualify for “fast track” SSD benefit decisions in just days instead of months. Later, the list was expanded to 88 conditions, then to 100, and then again to 113. Now 233 conditions qualify for compassionate allowance fast-tracking.

If your disability is on the list, be sure to let the SSA know about it when you apply for SSD benefits or when you contest a denial. Point out on your document that you have a medical condition that qualifies for a Compassionate Allowance. Here is the most recent list. Note that some illnesses have been renamed. In the list below Hurler Syndrome is now MPS I, Hunter Syndrome is now MPS II, and Sanfilippo Syndrome is now MPS III.

Acute Leukemia 
Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent 
Adult Non-Hodgkin Lymphoma
Adult Onset Huntington Disease 
Aicardi-Goutieres Syndrome
Alexander Disease (ALX) – Neonatal and Infantile
Allan-Herndon-Dudley Syndrome 
Alobar Holoprosencephaly
Alpers Disease 
Alpha Mannosidosis – Type II and III 
ALS/Parkinsonism Dementia Complex 
Alstrom Syndrome 
Alveolar Soft Part Sarcoma 
Amegakaryocytic Thrombocytopenia 
Amyotrophic Lateral Sclerosis (ALS) 
Anaplastic Adrenal Cancer – Adult with distant metastases or inoperable, unresectable or recurrent
Angelman Syndrome
Angiosarcoma 
Aortic Atresia 
Aplastic Anemia 
Astrocytoma – Grade III and IV 
Ataxia Telangiectasia
Atypical Teratoid/Rhabdoid Tumor 
Batten Disease 
Beta Thalassemia Major 
Bilateral Optic Atrophy- Infantile 
Bilateral Retinoblastoma 
Bladder Cancer – with distant metastases or inoperable or unresectable
Breast Cancer – with distant metastases or inoperable or unresectable
Canavan Disease (CD)
CACH–Vanishing White Matter Disease-Infantile and Childhood Onset Forms
Carcinoma of Unknown Primary Site
Cardiac Amyloidosis- AL Type 
Caudal Regression Syndrome – Types III and IV 
Cerebro Oculo Facio Skeletal (COFS) Syndrome 
Cerebrotendinous Xanthomatosis
Child Lymphoblastic Lymphoma
Child Lymphoma 
Child Neuroblastoma – with distant metastases or recurrent
Chondrosarcoma – with multimodal therapy
Chronic Idiopathic Intestinal Pseudo Obstruction 
Chronic Myelogenous Leukemia (CML) – Blast Phase
Coffin-Lowry Syndrome 
Congenital Lymphedema
Congenital Myotonic Dystrophy
Cornelia de Lange Syndrome – Classic Form
Corticobasal Degeneration 
Creutzfeldt-Jakob Disease (CJD) – Adult 
Cri du Chat Syndrome 
Degos Disease – Systemic
DeSanctis Cacchione Syndrome 
Dravet Syndrome 
Early-Onset Alzheimer’s Disease
Edwards Syndrome (Trisomy 18) 
Eisenmenger Syndrome 
Endometrial Stromal Sarcoma
Endomyocardial Fibrosis 
Ependymoblastoma (Child Brain Cancer)
Erdheim Chester Disease
Esophageal Cancer
Esthesioneuroblastoma 
Ewing Sarcoma
Farber Disease (FD) – Infantile 
Fatal Familial Insomnia
Fibrodysplasia Ossificans Progressiva
Fibrolamellar Cancer
Follicular Dendritic Cell Sarcoma – metastatic or recurrent
Friedreichs Ataxia (FRDA)
Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult 
Fryns Syndrome 
Fucosidosis – Type 1 
Fukuyama Congenital Muscular Dystrophy 
Fulminant Giant Cell Myocarditis 
Galactosialidosis – Early and Late Infantile Types 
Gallbladder Cancer 
Gaucher Disease (GD) – Type 2
Giant Axonal Neuropathy 
Glioblastoma Multiforme (Brain Cancer) 
Glioma Grade III and IV 
Glutaric Acidemia – Type II 
Head and Neck Cancers – with distant metastasis or inoperable or unresectable
Heart Transplant Graft Failure 
Heart Transplant Wait List – 1A/1B 
Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type 
Hepatoblastoma
Hepatopulmonary Syndrome 
Hepatorenal Syndrome 
Histiocytosis Syndromes
Hoyeaal-Hreidarsson Syndrome 
Hutchinson-Gilford Progeria Syndrome 
Hydranencephaly
Hypocomplementemic Urticarial Vasculitis Syndrome 
Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types
Hypoplastic Left Heart Syndrome
I Cell Disease 
Idiopathic Pulmonary Fibrosis
Infantile Free Sialic Acid Storage Disease 
Infantile Neuroaxonal Dystrophy (INAD)
Infantile Neuronal Ceroid Lipofuscinoses 
Inflammatory Breast Cancer (IBC) 
Intracranial Hemangiopericytoma 
Jervell and Lange-Nielsen Syndrome
Joubert Syndrome 
Junctional Epidermolysis Bullosa – Lethal Type 
Juvenile Onset Huntington Disease 
Kidney Cancer – inoperable or unresectable
Kleefstra Syndrome
Krabbe Disease (KD) – Infantile 
Kufs Disease – Type A and B 
Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent>
Late Infantile Neuronal Ceroid Lipofuscinoses 
Leigh’s Disease
Leiomyosarcoma
Leptomeningeal Carcinomatosis
Lesch-Nyhan Syndrome (LNS) 
Lewy Body Dementia
Liposarcoma – metastatic or recurrent 
Lissencephaly 
Liver Cancer 
Lowe Syndrome 
Lymphomatoid Granulomatosis – Grade III 
Malignant Brain Stem Gliomas – Childhood
Malignant Ectomesenchymoma 
Malignant Gastrointestinal Stromal Tumor 
Malignant Germ Cell Tumor 
Malignant Multiple Sclerosis
Malignant Renal Rhabdoid Tumor
Mantle Cell Lymphoma (MCL) 
Maple Syrup Urine Disease
Marshall-Smith Syndrome 
Mastocytosis – Type IV 
MECP2 Duplication Syndrome 
Medulloblastoma – with metastases
Megacystis Microcolon Intestinal Hypoperistalsis Syndrome
Megalencephaly Capillary Malformation Syndrome 
Menkes Disease – Classic or Infantile Onset Form
Merkel Cell Carcinoma – with metastases 
Merosin Deficient Congenital Muscular Dystrophy
Metachromatic Leukodystrophy (MLD) – Late Infantile
Mitral Valve Atresia 
Mixed Dementias 
MPS I, formerly known as Hurler Syndrome 
MPS II, formerly known as Hunter Syndrome 
MPS III, formerly known as Sanfilippo Syndrome 
Mucosal Malignant Melanoma 
Multicentric Castleman Disease 
Multiple System Atrophy 
Myoclonic Epilepsy with Ragged Red Fibers Syndrome 
Neonatal Adrenoleukodystrophy 
Nephrogenic Systemic Fibrosis 
Neurodegeneration with Brain Iron Accumulation – Types 1 and 2 
NFU-1 Mitochondrial Disease
Niemann-Pick Disease (NPD) – Type A 
Niemann-Pick Disease-Type C 
Nonketotic Hyperglycinemia
Non-Small Cell Lung Cancer
Obliterative Bronchiolitis 
Ohtahara Syndrome
Oligodendroglioma Brain Cancer- Grade III
Ornithine Transcarbamylase (OTC) Deficiency 
Orthochromatic Leukodystrophy with Pigmented Glia 
Osteogenesis Imperfecta (OI) – Type II 
Osteosarcoma, formerly known as Bone Cancer – with distant metastases or inoperable or unresectable
Ovarian Cancer – with distant metastases or inoperable or unresectable
Pallister-Killian Syndrome 
Pancreatic Cancer
Paraneoplastic Pemphigus 
Patau Syndrome (Trisomy 13) 
Pearson Syndrome 
Pelizaeus-Merzbacher Disease-Classic Form 
Pelizaeus-Merzbacher Disease-Connatal Form 
Peripheral Nerve Cancer – metastatic or recurrent 
Peritoneal Mesothelioma 
Peritoneal Mucinous Carcinomatosis
Perry Syndrome 
Phelan-McDermid Syndrome
Pleural Mesothelioma 
Pompe Disease – Infantile
Primary Central Nervous System Lymphoma 
Primary Effusion Lymphoma 
Primary Progressive Aphasia
Progressive Bulbar Palsy
Progressive Multifocal Leukoencephalopathy 
Progressive Supranuclear Palsy
Prostate Cancer – Hormone Refractory Disease – or with visceral metastases 
Pulmonary Atresia 
Pulmonary Kaposi Sarcoma 
Retinopathy of Prematurity – Stage V
Rett (RTT) Syndrome
Revesz Syndrome
Rhabdomyosarcoma 
Rhizomelic Chondrodysplasia Punctata 
Roberts Syndrome
Salivary Cancers 
Sandhoff Disease 
Schindler Disease – Type 1
Seckel Syndrome 
Severe Combined Immunodeficiency – Childhood
Single Ventricle
Sinonasal Cancer 
Sjogren-Larsson Syndrome 
Skin Malignant Melanoma with Metastases
Small Cell Cancer (Large IntestineProstate or Thymus)
Small Cell Cancer of the Female Genital Tract
Small Cell Lung Cancer 
Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
Smith Lemli Opitz Syndrome
Soft Tissue Sarcoma – with distant metastases or recurrent
Spinal Muscular Atrophy (SMA) – Types 0 and 1
Spinal Nerve Root Cancer-metastatic or recurrent 
Spinocerebellar Ataxia
Stiff Person Syndrome 
Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
Subacute Sclerosing Panencephalitis
Superficial Siderosis of the Central Nervous System
Tabes Dorsalis 
Tay Sachs Disease – Infantile Type
Tetrasomy 18p
Thanatophoric Dysplasia – Type 1 
Thyroid Cancer
Transplant Coronary Artery Vasculopathy
Tricuspid Atresia 
Ullrich Congenital Muscular Dystrophy 
Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent
Usher Syndrome – Type I
Ventricular Assist Device Recipient – Left, Right, or Biventricular 
Walker Warburg Syndrome 
Wolf-Hirschhorn Syndrome 
Wolman Disease
X-Linked Lymphoproliferative Disease
X-Linked Myotubular Myopathy
Xeroderma Pigmentosum 
Zellweger Syndrome 

As noted above, from time to time other medical conditions are added to the list.

Advertisement

Compassionate Allowances—the “Fast Track” for Those with Certain Disabilities
Rate this post

Read It To Me
Listen to the article with our text to speech feature
Advertisement
Ask the Adivsor
Advertisement

Send this to a friend